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Williams, J.K., Skriton, H., Paulsen, J.S., Tripp-Reimer, T., Jarmon, L., McGonigal Kenney, M., Birrer, E., Hennig, B.L. and Honeyford, J. (2008) The Emotional Experiences of Family Carers in Huntington Disease. Journal of Advanced Nursing, 65, 789-798. http://dx.doi.org/10.1111/j.1365-2648.2008.04946.x

has been cited by the following article:

• TITLE: Being a Next of Kin—Experiences of Burden and Quality of Life

  AUTHORS: Elisabeth Liedström, Annica Kihlgren, Kirsti Skovdahl, Jenny Windahl

  KEYWORDS: Next of Kin; Informal Caregiver; Quality of Life; Burden; Life Situation

  JOURNAL NAME: Open Journal of Nursing, Vol.4 No.4, April 9, 2014

  ABSTRACT: Aim and Objectives: To increase the understanding of next of kin’s life situation in the context of supporting persons who are long term ill, disabled and/or older by describing their experienced burden and quality of life and also the relationship between QoL, burden and socioeconomic variables. Methods: Cross-sectional, descriptive and correlative design. Eighty-four next of kin answered two questionnaires: the Caregiver Burden Scale and the Subjective Quality of Life. Results: Next of kin experienced a high burden in their life situation although they, at the same time, experienced a good quality of life. In the results gender differences were found. Females next of kin to a higher extent were disappointed, more emotionally involved, and they also estimated their economic situation as more unsatisfactory than the males next of kin. Conclusion: Healthcare personnel meet next of kin, persons in need of care, within all healthcare and social care in society. Therefore it is important to have a general knowledge and ability to understand the next of kin’s life situation, thus making it possible to focus the nursing interventions on individual support regardless of the care receiver’s diagnosis.